On the Mayo Clinic Radio podcast, Dr. Christopher Aakre, an internal medicine specialist in Mayo Clinic’s Fibromyalgia and Chronic Fatigue Clinic, discusses …
40 Responses
They need to check out fmtest.com and speak with them about this horrible illness.
It can do more than affect your quality of life.. It can combine with neuropathic pain to produce such a serious and continuous pain, that life is not worth living, unless the person is treated with strong opioids..Most people only experience pain in response to a movement or tissue damage. Fibromyalgia is just there for seemingly no reason, in an otherwise healthy individual.
Kinda effects you’re quality of life, lol!! She’s so annoyingly happy it’s distracting!! Not a very good candidate to conduct this interview! I have a hard time believing it will ever be taken seriously!!!
Weird how everyone i known with this is on benefits and only seems to be "sick" when it suits them!! Mostly women as well and never working just makes it easier to claim benefits aand it sounds serious! But actually is not!! Walking with those stick things like the great slobs they are!!!
How many people get told by drs that you are "hyper sensitive "? And I'm sick of it. How about a dr, a researcher, someone find some some worthwhile treatments!!@!@
I don't even know if I'll have a bed to sleep in cuz I'm on social security. One check from homelessness with fibromyalgia and neck my back problems. I've had fibromyalgia for almost 20 years and I keep going through the same vicious cycle with the doctors. I lost almost everything dear to me, even the will to live once upon a time. My digestive system is messed up from taking a lot of pills. I've been treated for allergies. I asked the doctor if I'm having a reaction to the fillers they are using in the pills. He didn't know. So I did my own research. The patents the medications aren't able to give you that information due to patents.Now I'm working on getting liquid, patches and crushing my pills. The wellness works good because it gives you time to know and learn what are your limitations. People can be very pushy and the paperwork is just unbearable as far as resources. It really helps to have a good support system. I don't mean people who complain and be noticeably impatiens. They'll make the problems worse. Wellness is the way to go. It's a long process because you got to learn how to put yourself first. It's hard when you're trying to just keep your bare necessities in order. I know there's got to be some doctors/healers out there as well.Some took my money and said I was crazy. Don't worry about what people think about you. Take your time and do what you need to do for your wellness. Peace be with being.
Yes there are complications if ignored. I have so much pain several times now it has been brushed off by doctors or even myself that health issues have been missed and untreated. My biggest fear is cancer or heart disease etc not being detected early because I can't live in my doctors office and check everything going on in my body.
I have fibromyalgia and it causes a lot of amplified pain and I also have venous insufficiency so my legs ach all the time worse my skin feels like I have a rug burn on the outside sensation sensitive when I was 14 they did the tender point test on me I am not a twin but I am the only person in my family to have fibro but my cousin has lupus
I would prescribe psylocibin mushrooms for this and any other psychosomatic illness like M.E/CFS to fix their fucked up brains. Even the people who fall for the whole physiological meme agree shrooms help. How could that be the case unless it were psychosomatic? These hysterical women get offended too quickly, I'm probably more mentally ill than any of them but only insofar as my homicidal urges. Good day!
MD's are worthless when it comes to this condition, and these questions are smug at best. Better to find a Naturopath and a talented Acupuncturist, than pay Mayo for ideas like, "go meditate"–you can do that without them.
Do they use the same reactions while talking about bone cancer? ….. I bet they don’t …. yet my life is worse, with cancer I ll get insurance and I know I soon will die without being worried with my future. With this I m dying slowly seeing changes to my ability levels, changes to who I was, and yet I don’t die and am early in my life. This is far worse.
why are they all smiling, I'm you tubing this because both my sisters have it and out of nowhere I've suddenly got aching and muscle pain everywhere, it sounds very alike what im experincing and i don't find it a smiling matter x-D
Tried those didnt work. Massage makes my worse. It hurts to be touched at times. Being in a pool and walking slowly helps at the time but then I might not get out of bed for a day or week or a month
My family don't understand they say get a hobby or exercise and I try. Sweeping a floor by the end of the day I can't hardly left my arms or walk. Some days I cant think blurry vision, or just no energy to take a shower or get out of bed. I also have nerve damage due to back surgery went wrong. Sciatica pain is severe but the it doesn't compare to fibromyalgia. Tried pain meds and management, specialist. It's hard when they don't understand
My headaches are like someone is pulling my brain out of my head. Arms back legs hands feet feel like someone is taking a hammer and hitting me down my my body. Fatigue, insomnia, constipation, stomach nausea or upset. I cry alot
If you say it's a syndrome I swear I'm going to scream!!!! The more people call this a syndrome, the less likely it is to get help or for Drs to take this seriously!!! It's absolutely despicable to me who's had it since I was 32! I'm now 50! So for heaven's sake STOP CALLING IT A SYNDROME!!!!!! FIBRO IS A DISEASE!!!!!! NOT A SYNDROME!!!!!
PEOPLE DON'T UNDERSTAND FIBRO DO CHANGE LIFE DRAMATICALLY THERE ARE SO MANY CHANGES WHEN THIS DISEASE STRIKES , and y=this woman shows being exceptic i do do wish this to anyone the pain is unbearable and constant, insomnia, headache trouble concentrating , unable to seat with out a cushion because it hurts to put pressure , irritable bowl syndrome depression, sleeping does not relieve tiredness. i hate this it did turned my life upside down.
I was diagnosed with MS 15 years ago, Diabetes 7 years ago, Fibromyalgia 6 months ago! not a laughing Matter you definitely can have more than one autoimmune disease. 😥
So bizarre, waking up as if I had got my ass beat in a street brawl the day before, along with a horrific headache when I did nothing but maybe a load of laundry the day before. A special bonus is being med resistant to antidepressants & some severe side effects. Feeling like a lab rat or science project is an understatement.
It is true but I found relief at Semihan Clinic I think mine is caused by emotions and depression Dr Baek gives me a lot of relief with my fibromyalgia pain. The first day he took X-ray of my spinal cord and ask questions about my pain locations. I told him over 50 locations all over my body. From head to toe, from my brain to my bare feet, from my internal parts to the outside of my whole body. Dr Baek recommended that I come 6 days straight for treatment. He said he will try his best but cannot promise me but I feel confident that I will find some relief from him. I came from Alabama for treatment so I decided to schedule 13 days of treatment. I noticed a lot of relief after 7 days. 7 days through 13 days better and better. Dr adjusted my spinal cord by looking at the X-ray and by using his instrument meter. Life was desperate for me before but finally my prays finally came true for me , God finally guided me to the right clinic after so many doctors visits state wide. I feel happy and blessed. I feel like I have a life again and a reason to live on with no depression. Thank you god for the blessings Thank you Dr Baek for all your help. Steven C
I had mono when I was pregnant with my first child. About 5 years later I came down with Chronic Fatigue. I didn't know it was possible to be that tired and live. It's not normal. Now, at 60, I have finally been diagnosed with Fibromyalgia. These diseases have wrecked my life. It's not something people understand unless they've been through it. The good news is that it won't kill you. The bad news is that it won't kill you.
This is common from some profesionals they are ignorant and don't know anything about it or think it is in the head or only middle aged women get it do your research it can be mistaken for or mask many serious health problems
They need to check out fmtest.com and speak with them about this horrible illness.
It can do more than affect your quality of life.. It can combine with neuropathic pain to produce such a serious and continuous pain, that life is not worth living, unless the person is treated with strong opioids..Most people only experience pain in response to a movement or tissue damage. Fibromyalgia is just there for seemingly no reason, in an otherwise healthy individual.
also, i need to show this to my chiropractor who explained it as an exclusion term…….jerk.
why is she laughing when she said your just in pain all the time.
The interviewers have no empathy. The speaker does a good job trying to get his point across.
Who do i see for it far as specialists?
Kinda effects you’re quality of life, lol!!
She’s so annoyingly happy it’s distracting!! Not a very good candidate to conduct this interview! I have a hard time believing it will ever be taken seriously!!!
Weird how everyone i known with this is on benefits and only seems to be "sick" when it suits them!! Mostly women as well and never working just makes it easier to claim benefits aand it sounds serious! But actually is not!! Walking with those stick things like the great slobs they are!!!
How many people get told by drs that you are "hyper sensitive "? And I'm sick of it. How about a dr, a researcher, someone find some some worthwhile treatments!!@!@
I don't even know if I'll have a bed to sleep in cuz I'm on social security. One check from homelessness with fibromyalgia and neck my back problems. I've had fibromyalgia for almost 20 years and I keep going through the same vicious cycle with the doctors. I lost almost everything dear to me, even the will to live once upon a time. My digestive system is messed up from taking a lot of pills. I've been treated for allergies. I asked the doctor if I'm having a reaction to the fillers they are using in the pills. He didn't know. So I did my own research. The patents the medications aren't able to give you that information due to patents.Now I'm working on getting liquid, patches and crushing my pills. The wellness works good because it gives you time to know and learn what are your limitations. People can be very pushy and the paperwork is just unbearable as far as resources. It really helps to have a good support system. I don't mean people who complain and be noticeably impatiens. They'll make the problems worse. Wellness is the way to go. It's a long process because you got to learn how to put yourself first. It's hard when you're trying to just keep your bare necessities in order. I know there's got to be some doctors/healers out there as well.Some took my money and said I was crazy. Don't worry about what people think about you. Take your time and do what you need to do for your wellness. Peace be with being.
Yes there are complications if ignored. I have so much pain several times now it has been brushed off by doctors or even myself that health issues have been missed and untreated. My biggest fear is cancer or heart disease etc not being detected early because I can't live in my doctors office and check everything going on in my body.
Not only do they not know what they are talking about, but they will never see our comments.
I have fibromyalgia and it causes a lot of amplified pain and I also have venous insufficiency so my legs ach all the time worse my skin feels like I have a rug burn on the outside sensation sensitive when I was 14 they did the tender point test on me I am not a twin but I am the only person in my family to have fibro but my cousin has lupus
I would prescribe psylocibin mushrooms for this and any other psychosomatic illness like M.E/CFS to fix their fucked up brains. Even the people who fall for the whole physiological meme agree shrooms help. How could that be the case unless it were psychosomatic? These hysterical women get offended too quickly, I'm probably more mentally ill than any of them but only insofar as my homicidal urges. Good day!
MD's are worthless when it comes to this condition, and these questions are smug at best. Better to find a Naturopath and a talented Acupuncturist, than pay Mayo for ideas like, "go meditate"–you can do that without them.
Do they use the same reactions while talking about bone cancer? ….. I bet they don’t …. yet my life is worse, with cancer I ll get insurance and I know I soon will die without being worried with my future. With this I m dying slowly seeing changes to my ability levels, changes to who I was, and yet I don’t die and am early in my life. This is far worse.
Sounds like they have no help for people who suffer with fibromyalgia!
This helped me a lot I have it and I’ll only 19
I have gotten inflammation now.😰
I have been diagnosed with this and so I found the information very useful
why are they all smiling, I'm you tubing this because both my sisters have it and out of nowhere I've suddenly got aching and muscle pain everywhere, it sounds very alike what im experincing and i don't find it a smiling matter x-D
Tried those didnt work. Massage makes my worse. It hurts to be touched at times. Being in a pool and walking slowly helps at the time but then I might not get out of bed for a day or week or a month
My family don't understand they say get a hobby or exercise and I try. Sweeping a floor by the end of the day I can't hardly left my arms or walk. Some days I cant think blurry vision, or just no energy to take a shower or get out of bed. I also have nerve damage due to back surgery went wrong. Sciatica pain is severe but the it doesn't compare to fibromyalgia. Tried pain meds and management, specialist. It's hard when they don't understand
My headaches are like someone is pulling my brain out of my head. Arms back legs hands feet feel like someone is taking a hammer and hitting me down my my body. Fatigue, insomnia, constipation, stomach nausea or upset. I cry alot
If you say it's a syndrome I swear I'm going to scream!!!! The more people call this a syndrome, the less likely it is to get help or for Drs to take this seriously!!! It's absolutely despicable to me who's had it since I was 32! I'm now 50! So for heaven's sake STOP CALLING IT A SYNDROME!!!!!! FIBRO IS A DISEASE!!!!!! NOT A SYNDROME!!!!!
PEOPLE DON'T UNDERSTAND FIBRO DO CHANGE LIFE DRAMATICALLY THERE ARE SO MANY CHANGES WHEN THIS DISEASE STRIKES , and y=this woman shows being exceptic i do do wish this to anyone the pain is unbearable and constant, insomnia, headache trouble concentrating , unable to seat with out a cushion because it hurts to put pressure , irritable bowl syndrome depression, sleeping does not relieve tiredness. i hate this it did turned my life upside down.
Conventional medicine is useless. Find a functional medicine provider.
I have fibromyalgia… Im 17 yrs old
BONE CRUCSHING Pain
I was diagnosed with MS 15 years ago, Diabetes 7 years ago, Fibromyalgia 6 months ago! not a laughing
Matter you definitely can have more than one autoimmune disease. 😥
So bizarre, waking up as if I had got my ass beat in a street brawl the day before, along with a horrific headache when I did nothing but maybe a load of laundry the day before.
A special bonus is being med resistant to antidepressants & some severe side effects. Feeling like a lab rat or science project is an understatement.
Have studies been done on time of year born and how it might have a contributing factor?
In my case massage can be painful and I avoid it.
It is true but I found relief at Semihan Clinic
I think mine is caused by emotions and depression
Dr Baek gives me a lot of relief with my fibromyalgia pain. The first day he took X-ray of my spinal cord and ask questions about my pain locations. I told him over 50 locations all over my body. From head to toe, from my brain to my bare feet, from my internal parts to the outside of my whole body. Dr Baek recommended that I come 6 days straight for treatment. He said he will try his best but cannot promise me but I feel confident that I will find some relief from him. I came from Alabama for treatment so I decided to schedule 13 days of treatment. I noticed a lot of relief after 7 days. 7 days through 13 days better and better. Dr adjusted my spinal cord by looking at the X-ray and by using his instrument meter. Life was desperate for me before but finally my prays finally came true for me , God finally guided me to the right clinic after so many doctors visits state wide. I feel happy and blessed. I feel like I have a life again and a reason to live on with no depression.
Thank you god for the blessings
Thank you Dr Baek for all your help.
Steven C
Clearly we are still not beleived and a big joke. Don’t the doctor on the left even knows it exists
I have never wished pain on anyone. But these 3 need a taste of Fibromyalgia.
I've broke my hand on accident twice and fibromyalgia in the back is way worse.
I had mono when I was pregnant with my first child. About 5 years later I came down with Chronic Fatigue. I didn't know it was possible to be that tired and live. It's not normal. Now, at 60, I have finally been diagnosed with Fibromyalgia. These diseases have wrecked my life. It's not something people understand unless they've been through it. The good news is that it won't kill you. The bad news is that it won't kill you.
This is common from some profesionals they are ignorant and don't know anything about it or think it is in the head or only middle aged women get it do your research it can be mistaken for or mask many serious health problems
It's nice to see doctors laughing about my condition. (sigh)