This video is just me venting about how I’ve been feeling. I get days like these where I get so depressed about my seizures, usually around my menstrual time of …
33 Responses
I unfortunately can't relate to the menstrual part though. It comes and goes cause I've had menstrual issues since I started lol
I am so sorry you are so frustrated I am so sorry about your seizures itโs so painful and so sad I wish you very good luck and I just pray for you that things get better
Stumbling across your video makes remember when I had seizures. I might have been young but my parents told me things about them and the medicine I was on. I out grew mine but I do feel bad for you. You are in my thoughts and prayers. I'm sure with advancements in medical technology there are better treatments out there. Never get yourself down at all. It's tough, no doubt find ways to do the things you see people doing, try online college. I know what you are going thru some. Dont ever let yourself be your own worst enemy .
I was taken ill at work with multiple seizures two days after you made this. My world fell apart when the Emergency Department doctor told me it was epilepsy! I'm now fighting to get my job back & feel very isolated due to not being able to drive. It takes a lot from you. Keep fighting though ๐โบ
Sweetheart just hearing u saying how u canโt do the things it makes me think that young people full of life b truly complaining about life Iโm so sorry to see u go thru this vicious cycle prayers love
what you described is 100% the life of an epileptic. (or from my experience it is) Find something to keep you busy. I started volunteering with the homeless in my town / doing volunteer work at my moms school. When you say you watch everyone else doing things with their lives and you can't I really felt that. Keep speaking the truth your videos are wonderful!
I study online university, you could try that. I graduate this year. Focus on some goal and go for it, there are many options to study, and in terms of work, well, youtube is currently a good way to earn money, just be creative and you will see that you will do very well. ๐ค
You made this two days before I had my first ever seizure this year. Having had loads since, I feel your frustration at not being able to work or drive. Especially since I am yet to see a neurologist about it. Hoping you get to be seizure free soon โบ
I would get very emotional around my period and would get feelings of doom like something bad was about to happen but I never knew what and when I had to have a partial hysterectomy I stopped having all of the emotional side effects or monthly break downs. I am a different person! It's great! You don't want to do that though, you're too young!
I know just how frustrating it can be too. My car was my lifeline until I had the devastating news that I have epilepsy. Now it's sitting in the yard waiting for its next owner. At we both have understanding parents. Hoping we can both be seizure free soon. โบ
You could try to find a volunteer 'job', something non-stressful and with a few hours that makes you feel useful. I don't know, it's just an idea. Be strong.
I love you ๐ฅบ Iโm 21 and Iโm also starting to get that age pressure because Iโm stuck getting my GED and some days I feel really down specially during my period ur not the only one love youโll pull through you are really really strong ๐๐
I absolutely 100% feel the same way but it's the entire week before my cycle- feeling like my world is just crashing down & being hyper sensitive to everything. You are definitely not alone! We need a support group channel for "that time of the month" lol
I have a couple questions! Just because Iโm curious. Are you ever scared to walk alone like you are right now, or be alone because of the seizures? Also do sleep alone? Do you ever have them in your sleep?
You are so young and have a whole life ahead of you. Lots of time to find out what the cause and cure if them. You will have a long happy life seizure free.
Take one day at a time, And talk to Jesus,Heโs closer than you think ,He will give you peace that surpasses the understanding of this world ,He Loves you so much and you are so precious to Him,He will guide you,Just grab hold of His hand ,and hold on tight,He will bring you through this.I Love You my friend,You are deeply loved and everything will be ok.๐๐ผโฅ๏ธ
I am just finishing my second online degree, i have a seizure disorder and i am on tegretol ,18 year seizure free-thank God. I can empathize with your situation. I am sorry you have to deal with this. Does the neurologist think it will get any better? This is aweful that vaccinces caused this.
While my epilepsy is genetic I get it from my dad's side of my family it didn't start becoming an issue until I was 24 and I banged the back of my head into my sister's exs moving van hard.
I would really like to speak to you if youโd let me. I so understand the place your in. Hereโs my email address if your willing to speak to me thebookofroo@gmail.com
I unfortunately can't relate to the menstrual part though. It comes and goes cause I've had menstrual issues since I started lol
Lots of us stand with you!!!!
Iโm so sorry youโre going through this ๐ I live in Pittsburgh!!! We have UPMC here and they have some of the top doctors!!! Check them out ??
I am so sorry you are so frustrated I am so sorry about your seizures itโs so painful and so sad I wish you very good luck and I just pray for you that things get better
Stumbling across your video makes remember when I had seizures. I might have been young but my parents told me things about them and the medicine I was on. I out grew mine but I do feel bad for you. You are in my thoughts and prayers. I'm sure with advancements in medical technology there are better treatments out there. Never get yourself down at all. It's tough, no doubt find ways to do the things you see people doing, try online college. I know what you are going thru some. Dont ever let yourself be your own worst enemy .
Youโre amazing for sharing your story. Thank u. I hope you get better! Youโre a beautiful person
Yes very true study online. God bless you pretty
I was taken ill at work with multiple seizures two days after you made this. My world fell apart when the Emergency Department doctor told me it was epilepsy! I'm now fighting to get my job back & feel very isolated due to not being able to drive. It takes a lot from you. Keep fighting though ๐โบ
you have youth energy. that is what you are feeling. youth energy.
You can go to classes just take one or two. you with out a doubt can take classes
Sweetheart just hearing u saying how u canโt do the things it makes me think that young people full of life b truly complaining about life Iโm so sorry to see u go thru this vicious cycle prayers love
๐ธ๐
Hold the faith . God never leave you .
You will fain.
what you described is 100% the life of an epileptic. (or from my experience it is) Find something to keep you busy. I started volunteering with the homeless in my town / doing volunteer work at my moms school. When you say you watch everyone else doing things with their lives and you can't I really felt that. Keep speaking the truth your videos are wonderful!
I study online university, you could try that. I graduate this year. Focus on some goal and go for it, there are many options to study, and in terms of work, well, youtube is currently a good way to earn money, just be creative and you will see that you will do very well. ๐ค
You made this two days before I had my first ever seizure this year. Having had loads since, I feel your frustration at not being able to work or drive. Especially since I am yet to see a neurologist about it. Hoping you get to be seizure free soon โบ
I would get very emotional around my period and would get feelings of doom like something bad was about to happen but I never knew what and when I had to have a partial hysterectomy I stopped having all of the emotional side effects or monthly break downs. I am a different person! It's great! You don't want to do that though, you're too young!
I know just how frustrating it can be too. My car was my lifeline until I had the devastating news that I have epilepsy. Now it's sitting in the yard waiting for its next owner. At we both have understanding parents. Hoping we can both be seizure free soon. โบ
You could try to find a volunteer 'job', something non-stressful and with a few hours that makes you feel useful. I don't know, it's just an idea. Be strong.
I love you ๐ฅบ Iโm 21 and Iโm also starting to get that age pressure because Iโm stuck getting my GED and some days I feel really down specially during my period ur not the only one love youโll pull through you are really really strong ๐๐
Yes I do…just starting this whole siezure thing now still don't know why…yes it is more intense around my period..
Stay strong, I know you can do it!
Sometimes I get That depressing feeling before my cycle but itโll go away
I absolutely 100% feel the same way but it's the entire week before my cycle- feeling like my world is just crashing down & being hyper sensitive to everything. You are definitely not alone! We need a support group channel for "that time of the month" lol
I have a couple questions! Just because Iโm curious. Are you ever scared to walk alone like you are right now, or be alone because of the seizures? Also do sleep alone? Do you ever have them in your sleep?
Keep your head up!
Yes
You are so young and have a whole life ahead of you. Lots of time to find out what the cause and cure if them. You will have a long happy life seizure free.
Take one day at a time, And talk to Jesus,Heโs closer than you think ,He will give you peace that surpasses the understanding of this world ,He Loves you so much and you are so precious to Him,He will guide you,Just grab hold of His hand ,and hold on tight,He will bring you through this.I Love You my friend,You are deeply loved and everything will be ok.๐๐ผโฅ๏ธ
๐๐๐ป๐๐๐ป
I am just finishing my second online degree, i have a seizure disorder and i am on tegretol ,18 year seizure free-thank God. I can empathize with your situation. I am sorry you have to deal with this. Does the neurologist think it will get any better? This is aweful that vaccinces caused this.
While my epilepsy is genetic I get it from my dad's side of my family it didn't start becoming an issue until I was 24 and I banged the back of my head into my sister's exs moving van hard.
I would really like to speak to you if youโd let me. I so understand the place your in. Hereโs my email address if your willing to speak to me thebookofroo@gmail.com
You stay strong