I also have a seizure disorder here is my story When I was 2 I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. As i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist.
At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i had an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself i also have severe in Processing Sdisorder Perceptual Reasoning, and Working Memory, Coordination,Dexterity, Fine and gross Motor Skills, Hand Strength, Visual Perceptual Skills.
When was 19, my father died, and it seems I have had a relapse if that is possible.I still have my absence seizure but it is not enough to put me on meds. When I was thirteen I had my last EEG and my seizures showed up as misfired neurons not seizure activity per say and the Dr. called them “flurries", so here is what my flurries are typically like: I will become very spacey, I can not interact with my surroundings, I also felt locked in to place. I am completely aware, my vision becomes like a tunnel, and thing start to move or vibrate on their own.
I have autism and epilepsy. Don't think I've ever had a grandmal but my seizures have almost killed me. I can even forget my name and forget how to do things. I'm sorry that u guys go thru this.
Oh man, as a fellow Autism parent I feel for you. We’re thinking of you. Not focused on academics here either and we are also considering driving an hour to a special school.
I suggest this issue be discussed with his doctors to seek their opinion and perhaps provide a change in his medication to make it more suited to his new state. This can make a HUGE difference and help him catch up with his progress soon. And remember, roads are never always flats and straight. They have ups, downs, curves, potholes, etc. Just drive to conditions.
So so sorry!! You guys are amazing parents. I really hope if you do have to move back that you guys can get a house and figure out what you guys are going to do. I can imagine how frustrating that is.
I always want there to be more sunshine and rainbows and unicorns in the stormy days but it's just not reality. And thank you so much for sharing that part of it too. I'm really glad you have this channel that that has helped so many people and that you can come on here too make videos like this. And as always since I first started watching I'm keeping you and your family in my thoughts and prayers.
I am sooo sorry your having to go thru this. It makes since to me though because even a cold, high fever, etc., can send Anthony in a spiral of behaviors for several weeks. I can only imagine what that would look like in a seizure. I am sending all the love, hugs and prayers I can give to you and the family.
Our guy doesn't have seizures. I feel for y'all. It is hard enough without seizures. Prayers for less seizures. And better behaviors. Puberty was horrible for us. It seemed to last forever. He is better, but still it did change him a bit. I am sorry things are tough. Prayers. Regression is the most disheartening thing EVER!!! EVER!!!!
Thank you for sharing your thoughts and what is currently happening with your son. I am new to your channel and appreciate you sharing because people, family, friends, they just don't freaking get it. At least I am able to share your experience to them and hopefully alert awareness.
My goodness am sure that was pretty scary for Jaiden having a Grand-Mal Seizures, I know when Alexander's behavior got worse my husband and I request a IEP meeting to talk about our sons recent change in behavior. We got new goals establish for him, and getting more help inside the school as well as outside the school setting. I know this might not be the answer for some parents , but just wanted to share. May God continue to bless you and your family big hugs
I'm here showing love & support like I always doand thanks for sharing because we are going through the same thing with our 12 year old daughter that has Autism she have been having some behaviors that we haven't seen in awhile and Blessings to you & your family Brother
I also have a seizure disorder here is my story
When I was 2 I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. As i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist.
At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i had an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned
The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself i also have severe in Processing Sdisorder Perceptual Reasoning, and Working Memory, Coordination,Dexterity, Fine and gross Motor Skills, Hand Strength, Visual Perceptual Skills.
When was 19, my father died, and it seems I have had a relapse if that is possible.I still have my absence seizure but it is not enough to put me on meds. When I was thirteen I had my last EEG and my seizures showed up as misfired neurons not seizure activity per say and the Dr. called them “flurries", so here is what my flurries are typically like: I will become very spacey, I can not interact with my surroundings, I also felt locked in to place. I am completely aware, my vision becomes like a tunnel, and thing start to move or vibrate on their own.
I have autism and epilepsy. Don't think I've ever had a grandmal but my seizures have almost killed me. I can even forget my name and forget how to do things. I'm sorry that u guys go thru this.
Oh man, as a fellow Autism parent I feel for you. We’re thinking of you. Not focused on academics here either and we are also considering driving an hour to a special school.
I suggest this issue be discussed with his doctors to seek their opinion and perhaps provide a change in his medication to make it more suited to his new state. This can make a HUGE difference and help him catch up with his progress soon. And remember, roads are never always flats and straight. They have ups, downs, curves, potholes, etc. Just drive to conditions.
So so sorry!! You guys are amazing parents. I really hope if you do have to move back that you guys can get a house and figure out what you guys are going to do. I can imagine how frustrating that is.
I always want there to be more sunshine and rainbows and unicorns in the stormy days but it's just not reality. And thank you so much for sharing that part of it too. I'm really glad you have this channel that that has helped so many people and that you can come on here too make videos like this. And as always since I first started watching I'm keeping you and your family in my thoughts and prayers.
I am sooo sorry your having to go thru this. It makes since to me though because even a cold, high fever, etc., can send Anthony in a spiral of behaviors for several weeks. I can only imagine what that would look like in a seizure. I am sending all the love, hugs and prayers I can give to you and the family.
Our guy doesn't have seizures. I feel for y'all. It is hard enough without seizures. Prayers for less seizures. And better behaviors.
Puberty was horrible for us. It seemed to last forever. He is better, but still it did change him a bit. I am sorry things are tough. Prayers. Regression is the most disheartening thing EVER!!! EVER!!!!
2 Corinthians 12:9
Thank you for sharing your thoughts and what is currently happening with your son. I am new to your channel and appreciate you sharing because people, family, friends, they just don't freaking get it. At least I am able to share your experience to them and hopefully alert awareness.
My goodness am sure that was pretty scary for Jaiden having a Grand-Mal Seizures, I know when Alexander's behavior got worse my husband and I request a IEP meeting to talk about our sons recent change in behavior. We got new goals establish for him, and getting more help inside the school as well as outside the school setting. I know this might not be the answer for some parents , but just wanted to share. May God continue to bless you and your family big hugs
I'm here showing love & support like I always do
and thanks for sharing because we are going through the same thing with our 12 year old daughter that has Autism she have been having some behaviors that we haven't seen in awhile and Blessings to you & your family Brother